Jay (MRI SCAN) August 08
G'day it's JAY"IT IS PUSHING ME TO LIVE"
On 25th AUGUST 2008 I lost another little friend to NB
Little Kahilla fought so hard always with a smile and always so happy but NB took over her frail little body and she is now a beautiful little Angel.
Please support her family especially here big sister and her new baby brother who she loved so very much.
KAHILLA even though you didn't know it, I checked on you every single day, I don't know why NB takes some and not others, but I will keep fighting until a cure is found so no more of my little friends have to suffer.
G'day everyone, I am sorry that I have worried alot of people because I have not done a journal for so long, but the computer doesn't always come first when life is a bit ruff and the past few months have been that for me and my darsly mum. I am not going to make this a long journal today, I have put up some photo's of just a couple of things I have done since talking last. But me and my darsly mum have been very sick and we have not done much at all, the only thing I have done just before I got sick and just before darsly mum got sick was to to to the V8 Supercars (which you know I enjoy very much) and got to catch up with my V8 Mates. Other than that we have spent it at the hospital with darsly mum being very sick and me having a few things done. We also at that time were in the process of moving house and was very hard because darsly mum was very sick. We don't have a house of our own, we are sharing a house at the moment, which is hard, but darsly mum is hoping to find a place for us soon.
Jay & Dr. Peter Downie
Above I am standing with my wonderful Oncology Doctor - Dr. Peter Downie (yipppeee) I'm now taller than him. Peter is the one who first diagnosed me with Neuroblastoma. When other doctors said there was nothing wrong with me - Peter did know there was something bad wrong. I have grown up with Peter and I don't see anyone but him as he is the only one I trust. If it were not for Peter I would not be here today, and I am alive because of him (I owe him everything) he will always be a part of my life. Peter specialises in solid tumors especially Neuroblastoma, so if you have NB (which I hope know one does) Peter is the Oncology doctor you want.
My height now is 175cm tall and I weight 63kg (Poor darlsy mum she is only 165cm)
I went back to see Peter last week, as I had all my tests done, MRI scan, Blood tests, Urine Test. 
Well it's that time again, MRI SCAN which has to be done. I have had so many MRI SCANS that it doesn't worry me anymore. All the guys in the MRI room they have also watched me grown up and now I am even taller that David who has done all of my scans who is in the photo's below. 
The IV is in the arm, got the groovy hospital pants on, porka is ready to go (he has had just as many scans as I have) and I am just waiting for David to prepare the MRI room as I first go into one room to have a scan then I have to change over to the other MRI scanner so my IV can be connected. 
Just being prepared for my first part of the scan, this is the first MRI scanner I am in above, I am in there for about 40 mins, than I change over to the other scanner. 
In I go, the button is pushed and I go into the donut
WOW - in I go, it's not scary at all - IT'S COOL
In the second scanner 
David is putting the stuff in my IV 
David is just talking to me making sure I am OK, I'm all set and he will go out of the room shut the door and he will talk to me through head phones while he is scanning me. 
It gets a bit tiring having a scan, wo, I am half asleep and so is porka..........This is when I got up from the first scanner and going to walk to the second scanner. 
That's it, the scan is all over with after a few hours of being scanned it's time to get up and get out.
Well that''s it, the scan is done and Peter gave me the results. I am OK, as I say there is no reason why I can't do anything I want to do in life even though I have this time bomb inside me, it is never going to stop me. I have proved doctors wrong in the past, I have defied all the odds stacked against me, so I am going to continue to defy the odds - even though I think stats are meaningless, I will continue to fight and WIN.
JAY - DARSLY MUM & V8 Supercar driver JASON BRIGHT
JAY & JAMES COURTNEY (V8 Supercar Driver)
Caught up with my mate James Courtney - another one I am nearly taller than. James said wow Jay you will be way taller than me next year. I had a great time with James, he showed me the new Ford (wow) what a car.JAY & CRAIG LOWNDES (V8 Supercar driver)
JAY - FORD BOY 
My darsly mum is feeling alot better, she was very sick with Pneumonia and she was in hospital. She had the worst case of Pneumonia you could get and I was so worried, I hate seeing my darsly mum sick. She lost over 5 kg, she is already a tiny person and she lost so much weight. Even when my darsly was sick, she was taking care of me because I was also very sick, vomiting,high temps, coughing and home from school for 3 weeks. But we are both fighters, we are both tough and we have bounced back even though we are going through some very tough times at the moment, we are fighters and we will soldier of because there are always worse of than we are. I will attempt to get to all my little friends out there, please understand how difficult things have been, we have not forgotten any of you, you are all always in my heart and thoughts. Now that darsly mum and I are feeling a bit better we will email all our friends and also visit little sick friends I have and leave messages for you all.
Please don't forget to sign my guest book as I love knowing you have all visited me, and your messages always make me happy.
JAY BULL
posted by *JAY* @ 10:15 am
