Camp Quality/Happy B-day Darlsy mum

JAY'S (Smile Mail)

P.O. BOX 2075

FOUNTAIN GATE

MELBOURNE - VICTORIA - AUSTRALIA

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G'DAY MATES

IT'S JAY

An add on by Darlsy mum : Jay came home from Camp Quality a little sick but he went straight to do his journal - he has not been that well and the NOSE BLEEDS have returned big time along with the HEADACHES - today Tuesday 26th many Nose Bleeds and tonight they still have not stopped - as he says - he will bounce back, nothing keeps him down even when he feels misserable he soldiers on always.

"CAMP QUALITY FUN"

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G'DAY to all my supporters - I am back - back from a wonderful, happy, fun, exciting week at "CAMP QUALITY" . I must say, as much fun as I had, it is great to be back home with my Darsly mum (I MISSED HER SO MUCH). While I was away, I would like to thank everyone for stopping in to check on me and leaving me great messages.

NOW - where do I start - "CAMP QUALITY" are the greatest people on earth, they have always taken care of me and made sure I have always had a great time. Us Cancer kids need a break and that is what Camp Quality is all about, they give us kids a chance to be kids and do things we have missed out on because we have to spend a lot of time in hospital having lots of yucky treatments, and being poked and prodded all the time. Camp Quality give us the chance to forget about our illness, forget about hospital and doctors and lets us be free to get on with our life with a BIG SMILE ON THE DILE. Camp Quality have been a family to me, I have grown up with them - the volunteers, the companions they are the most wonderful people who give up their time for us cancer kids. Some of the companions have their own children but they give up their time for us, that is how SPECIAL the people at Camp Quality are.

"BELOW - PICTURES OF OUR CAMP QUALITY FUN"

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MY WEEK AT CAMP QUALITY
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My week at Camp Quality started on SUNDAY 17th September, I was so excited and all ready and packed. Darlsy drove me to one of the pick up points, this one was right outside a big McDonald's, so of course as a treat whilst waiting for the COACHES to arrive Darlsy got me MACA'S for lunch. No need to hurry because nothing unusual the coaches were running late, so more time to eat my MACA'S. The Coaches arrived, there were a few other families waiting with us. Jeff one of the Coach drivers is my COMPANION and he got off and gave me a big hug, I was so excited to see JEFF and looking forward to having lots of fun. We loaded all the baggage into the coach, said our good byes, I gave Darsly a big big hug and off we went on to our Camp Quality adventure to the ACE HIGH HORSE RANCH. We arrived at the RANCH and we all had to meet and go through the emergency procedure then we had some free time until dinner. There were two dinner times (CABIN 1,2,3,4,5,6,7) were in the first group and the second were (CABIN 8,9,10,11,12). BOYS dorm - GIRLS DORM, the RED TRAIN and the HAY & GRAIN. I was in the BOYS DORM. We had a great dinner and then we all watched a movie. When we went to bed (PETER) one of the companions in my CABIN, he told us SCARY stories every night.

MONDAY 18th Sept - We all woke up early because all the DINGO'S woke us up - they were howling. We had breakfast at 8.30am to 9.00am. Then is was time for some great activities - WOW I went on the big FLYING FOX (you can see in one of the photo's) I went on it 7-8 times in a row, it was so much fun - it just goes on forever. Then it was time for LUNCH 12.45pm to 1.15pm and boy we were all very hungry after going on the flying fox so many times. After lunch we all have HORIZONTAL time just to catch up some energy for the next activity. The next thing was the BIG SWING and I mean BIG - it is the BIGGEST - TALLEST - GIANT SWING IN VICTORIA (you can see me on it in one of the photo's), such fun and of course I went on it so many times I forgot how many. By the time we all had done the GIANT swing it was getting near dinner time (hungry we all were). After dinner we watched C.Q. T.V that is (CAMP QUALITY TV), it is great, Adrian he does all the filming of what we do on camp and then we get to watch it all (he edits and puts music to it) very funny to watch and at the end of the week we all get a DVD of our week at Camp. The we had KIDZ ROCK that is a DISCO and I won a BEANNI BEAR, by the time the DISCO finished it was 10pm and time for BED.

TUESDAY 19th Sept - Those damn DINGO'S woke us all up real early again - howling away - I think they wanted their breakfast. We all got up - had a room inspection and then went off to have breakfast. First Activity this morning is HORSE RIDING - what fun that was, we all got a special horse, my horses name was JENGA, a very friendly horse. We were all first told the rules of horse riding and the safely aspects and then showed how to saddle up the horse and how to get on. Once we were all on (we went in groups), it was funny, JEFF my companion got a big DRAFT HORSE, Jeff is a big guy, so only the biggest horse would do for him (see the photo's of Jeff and myself on our horses) . We rode for miles and miles, it was about a 2 hour ride and our bums were a bit sore when we got off the horse. After Horse riding we had a little rest and some lunch and then it was time for our MEDIEVAL GAMES (it was a MEDIEVAL theme) so we all dressed up. We had water bombs, jumping castles, horse races, water races, bucking bull and lots lots more (see me on the Bucking Bull that was so much fun). For dinner we had a MEDIEVAL BANQUET - YUM YUM - I think we all ate too much. We watched C.Q.T.V of the day, and then we were suppose to have a big BOMB FIRE and a NIGHT walk but it was raining (YEP - we got a down pour of rain and those activities had to be cancelled) so we had some free time to annoy our companions and play tricks on them all and also got to play on the pool table and played table tennis.

"JAY & my horse JENGA" "My companion JEFF & his DRAFT HORSE"

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WEDNESDAY 20th Sept - YEP you guessed it those damn DINGO'S woke us up again 5.30 am howling away. A busy day today away from the RANCH. We all had our breakfast and showers and there were two buses waiting for us all as we were on our way to SORRENTO right on the beach to go have some fun at TOP FUN, there was mini golf, arcade games, bowling and lots lots more - which took up heaps of time. Then it was time for lunch and we went to the LIONS CLUB park where they put on a wonderful BBQ for us all. After lunch we got back on the buses and drove down to PORTSEA where we were all treated to ICE - CREAM, the companions could ge a coffee and what ever else Adults like to each. We then got to see the POLICE RESCUE HELICOPTER (See my photo of me sitting in the RESCUE HELICOPTER) I did not want to get out, so many controls and buttons to push - we stayed there for a long while and the Police explained about the rescues they do. We walked along the beach and did lots more activities and then it was time to go back to the RANCH because it was getting near dinner time. After dinner we all got to watch C.Q.TV of the days fun and then we watched the movie CARS - we were all very very tired after a full day of fun and we all hit the sack at 9.30pm.

"JAY in POLICE RESCUE HELICOPTER"

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THURSDAY 21st Sept - Another big day a head of us and yes you guessed it (THE DINGO'S) woke us up, but we were getting use to them now. Well we did have lots of activities planned but unfortunately it was a bad weather day, it rained (yep were are suppose to be in SPRING now) but we got this bad burst of STRONG WINDS and RAIN, but it dosn't deter CAMP QUALITY, there is always a backup if it is raining. The rain did not stay for long - but during that time a group of us got to go to the companions only area and played some more pool, UNO, table tennis and help make the C.Q.T.V - DVD - it is fun watching and helping Adrian make the DVD. The rain had stopped, time to get out and do some stuff around the RANCH - visited the animals, Kangaroos, Dingo's, Peacocks, wombats. Another HORSE RIDING day, FUN, and lots lots more. Tonight we had a POLICE ROCK AND ROLL BAND come and play - we danced, sang and just went crazy and then we had FIRE WORKS, they were so COOL.

FRIDAY 22nd SEPT - We caught up on what we missed out on Thursday night because it was a better day, today was jam packed and would be too long for me to tell. There was so much more that we did do, I hope you enjoy what I have told you about my week at CAMP and enjoy the photo's I have put up for you. I took Darlsy's old camera but did not take a lot of photo's because I was having too much fun. I know CAMP QUALITY people took lots of photos so when I get them off CAMP QUALITY I will show you all. OH - TODAY we did ARCHERY, I did not get a bulls eye but I had fun trying and also we did ROCK CLIMBING on the BIG ROCK WALL and I mean big. Everything on this RANCH is BIG - GIGANTIC - HUGE. Before going I wanted one last go on the BIG SWING and the FLYING FOX, it was fun because I was free just flying through the air. The week was so much fun but it was getting late and time for us all to start cleaning up and packing up for our trip home - as much as I want to go home - I don't want to - but really I did because I missed Darsly so much . I would text Darlsy every night before I went to bed to say ' GOOD NIGHT - LOVE YOU - SEE YOU IN THE MORNING" and she would test back the same to me.

SATURDAY 23rd Sept - We arrived home safely, the great driving of JEFF, I had to say good bye to JEFF my great companion and my mate, and also to all my friends from CAMP who I had so much fun with (my new mates Liam and Cameron) see you on the next camp mates, thanks for the fun times. It is always sad to say goodbye because sometimes I don't get to see some of the kids on the next camp - some of them don't make it through their illness and it is sad to turn up to the next camp knowing one of my friends has gone. But I must live on, live on in hope and not fear of what might be, live on and live my life to the full always. The memories I have of each camp I go on is embedded in my mind forever, and the best thing is we get a DVD of every camp we go on so the memories are always with me. I gave Darlsy the biggest hug and kiss when I saw her and we drove home. I was very tired, exhausted and not very well, I had picked up a bug and was coughing, sneezing, and had headaches. As much as the camp is fun, it is very exhausting and takes it toll on me each time I come home from a camp. I am not feeling the best still now but I wanted to get my journal done for you all to see the fun time I had.

"THE GANG IN MY CABIN"

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"TALLADEGANIGHTS - NASCAR"

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SUNDAY 24th Sept - Darsly took me to the MOVIES, we just wanted to spend time together because I had missed her so much so we went to the movies to see TALLADEGANIGHTS which has the NASCARS in it - so funny. See the picture below, I could not reach to stick my head in the whole but you can see me (LOL). We ate popcorn and enjoyed the movie then came home and had a nice quiet night - just DARLSY - ME & SNOWFLAKE.

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TO MY FRIENDS

I have missed you all very much over the past week - most of all I have missed my darsly mum the most. I will drop around and visit you all very soon (it is hard to always get on the computer) because it does take up a lot of time - as much as I want to get around to everyone I really have to keep it to just a few each day - but I will get there. I have a life I want to live, and sitting on a computer all day is not on my schedule of living life to the full. I try to do the computer stuff at night time so I can enjoy and live my life and have fun during the day - and so should all of you out there. I think we get a bit consumed with the computer instead of spending that much needed time with the one's you love - the sick ones in your life - the computer should never come first - your loved one's should always be the priority in life. I love to always tell my stories of the things I do in my life but I never let the computer get in the way of spending time with my darsly and my friends - the computer is a night time thing. I am sure there are lots of you out there who will now think to yourself (gee - JAY is right), the time I spend on the computer is precious time I should be spending with the one's we love. Computers can always wait - KIDS WITH CANCER don't have time to wait - we need your attention now - time is something which is very precious to a cancer child (don't waste it) sitting at a computer all day . My friends, please always fight the fight and never give up ever - I lost a little friend while I was away - another NEUROBLASTOMA friend, she did not give up - she was needed to lead the other NB ANGELS along in the fight to stop this monster killing us kids. This is suppose to be a rare cancer NEUROBLASTOMA, if it is so rare, then why do so many kids have it - not one - not two, but thousands of children (there is not just one NEUROBLASTOMA child) there are many and it is taking too many lives, too many innocent lives. Still I don't understand why I am so lucky to SURVIVE so far, I don't understand because we are all strong, all tough - all determined and all an inspiration - why it takes some and not others is a question that will never be answered, but I do know while I am still here I will fight to have the AWARENESS OF NEUROBLASTOMA known and fight to FIND A CURE - so please help me and other NB families find a cure by donating to NEUROBLASTOMA RESEARCH - we must stomp on the NB MONSTER for good. I must go now, I really am not feeling very well at all, but needed to get my journal done tonight. SEE you all very soon my friends - remember keep a BIG SMILE ON THE DILE and NEVER GIVE UP.

HAPPY BIRTHDAY DARSLY MUM

Friday 29th September

(I love you Darsly - from Jay)

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It's Camp Quality time 2006

G'DAY - it's JAY

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JAY'S (SMILE MAIL)

P.O. BOX 2075

FOUNTAIN GATE 3805

MELBOURNE - VICTORIA - AUSTRALIA

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THE SURVIVOR MOVIE (Who I am - A true Survivor)

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Jay's little NB friend 'Christie" passed away 9am 19th September - this horrible illness NEUROBLASTOMA has taken yet another innocent child - please pay your respects to the family of

CHRISTI THOMAS (NB - ^ANGEL^)

"IT'S CAMP QUALITY TIME"

It's that time of year again when I get to go away for a week with CAMP QUALITY (laughter is the best medicine) and I am so excited. Camp Quality gives kids like me with cancer the chance to go away and have lots of fun - smile - and be happy and catch up on things we have missed out on by being in hospital - having treatments and tests. Cancer kids do miss out on a lot of things but with CAMP QUALITY they bring the laughter back. Camp Quality have been my life, they are just like a family to me, a family I don't have (I only have my darsly mum), I get to see all my friends from hospital - kids I have grown up with in the hospital. Each child is assigned a companion for life and my companion is JEFF, he is a great guy, he drives the coach, he is a coach driver as well as my Camp Quality companion. I will be heading off on the Camp on Sunday 17th September for one week, and I am going to miss darsly mum so much, and she is going to miss me as well. She said she is going to b very lonely without me and wont know what to do with herself. I do love to go away, but I do miss darsly so much when I am away. We are going to a big HORSE RANCH, so we will be riding horses and doing lots of great things. We get to ride the horses along the beach so that will be cool - can't wait to do that. When I get back I will be able to tell you all about the week I had with Camp Quality and hopefully will get some photo's. On this camp we have a photographer who films us all on camp and he makes it into a movie, so each year we get a Camp Quality Capers DVD with us all on it, it is so funny to watch. Darlsy can't come so she can't take any photo's, but I will take a camera with me and try take some pictures. So everyone I will see you all at the end of next week. I think darlsy may do an update for me, but if not I will do one when I get back from CAMP QUALITY - see ya MATES - SEE YA ALL NEXT WEEK.

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THE WEEK THAT WAS

School is now over - yep Friday 15th September was the last day of term 3 and we get two weeks break then one term of school to go and then it will be Summer holidays. Not a bad week at school although I had pretty bad headaches and one headache was given to me because a kid kicked a ball into my head and I had to go to the sick bay for a while until my headache went away. We did not do much work seeing it was the last week of school - we just did lots of fun things, and I always do jobs for the Principal around the school and other teachers. I helped the Gardener on Thursday do all the gardens, mowing, weeding - that was fun. Steve Irwin's Memorial Service is on Wednesday at the Australia Zoo - and they only aloud 3,000 people - people queued up for tickets and there were some very disappointed people. The service will be beamed around the world from 9am Australian time next Wednesday 20th September (Australian time). On Tuesday 19th September PETER BROCK will be farewelled with a STATE funeral in Melbourne and on Friday 22nd September there will be a memorial service for Peter at Sandown Raceway where Peter lived his life as a V8 Supercar driver. STEVE IRWIN and PETER BROCKS SERVICES will be Live on TV.

MEDICAL FRONT

My headaches have still be giving me a lot of trouble, I try to not let them worry me, but they do hurt and also the pain in my legs, that is bad and hurts a lot. Darlsy is still talking with the doctors to see about another NEUROLOGIST appointment but looks like I still have to wait and that is until late next year - not much fun having to put up with so much pain and no able to see a specialist but that is just how it is here - it is the waiting game. Darlsy had to wait over 2 years to have her back operation - and we are not the only one's who have to wait, there are plenty of people on the waiting lists for many different health reasons. Darlsy said she is doing her best to get me in to see a specialist but not getting anywhere fast. My spot is still there on my spine - sitting there dormant on T-11 - T 12 (the time bomb which hopefully will not explode). Darlsy's back is very sore - painful and is still waiting on the next appointment with the Surgeon which should be in November.

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MY BEAUTIFUL QUILT MADE JUST FOR ME

Have a look at what I received in the mail this week - it is a beautiful quilt made lovingly by wonderful people at QUILTS 4 KIDS in AUSTRALIA. Each section is stitched by a different person and done to the theme I wanted which was cars and planes. It is so beautiful and it is big. I would like to thank all the people who took the time to care about me and stitch a square for my quilt, below are the names of all the people who lovingly stiched my quilt:

LINDE ADAMS (owner of quilts 4 kids Australia)

LINDE AMBROSE - Queensland Australia

ANNE SHACKELS - Melbourne Australia

BARBARA WOLFFE - Washington USA

CAROL - Etters USA

GAYLE SCOTT - Appleton Winconsin USA

HIDEKO - Brazil

KIM - Reidsville NC USA

MANDY - Tasmania

MARILYN - NSW Australia

PATRICIA DOUGAL - Belfast Ireland

RENE - Queensland Australia

ROBYN - Queensland Australia

SAM - Queensland Australia

SANDRA PETERSON - Miami Florida USA

TANIA - Victoria Australia

TRACY - Auckland New Zealand

Thank you so much to each of the people above who took the time to care about me and make me something so very special - I will treasure my quilt for the rest of my life THANK YOU.

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MY MATHS AWARD

Above is the award I got for doing the Maths Challenge. Each year at school there is an Australia Wide Maths Challenge - I participated in the Maths Challenge in July of this year and only just got the results and this is my award.

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JAY WITH TWO OF MY FAVORITE V8 SUPERCAR DRIVERS

I was so excited a few weeks ago to meet all my V8 Suercar drivers mates again and I just wanted to share each day some pictures of my favorite drivers - each journal I will put up a different one. The top photo is of me JAY and JAMES COURTNEY in the Jeldwen Shirt - he is such a great guy and so nice - he drives for the SBR team (Stone Brothers Racing). The photo below that is of me JAY and GRANT DENYA - Grant is so funny, and he is not ony a V8 Supercar Driver but also he drives Rally Cars and is also the Weather Man on our local Channel 7 and SUNRISE Progam in the mornings. Grant should be a comedian, dare him to do anything and he will do it.

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ME

I just wanted to write a little something about me. My life really has never been like the average normal kid - but, I have never known any different because Cancer has been my life - and anyway - WHAT IS NORMAL. In a strange way Cancer has moulded me into the person I am today - who know's - if I did not have cancer, I may not be the person I am today. Life for everyone is full of challenges, but I can tell you, all us kids battling Cancer have been dealth the biggest challenge on earth. You can't let thngs in life beat you, no matter what it is, you must tackle it head on with Courage and Determination. I have been to hell and back (along with many others), I have been cut in half, my scars on my body tell the story of a fighter. My scars, I call them MY SHARK BITES - I suppose I gave them that name because it looks like a shark has bitten me in half. I have defied the odds thrown against me - 10% chance of survival - I'M HERE. They said I would never walk again (well HELLO - I do more that just walk - I SPRINT). All my little cancer battlers out there, I give you all my strength - courage - determination - and positive attitude to NEVER GIVE UP. My mission now is to keep on surviving and to let all you parents out there, don't give up on your kids ever, fight the fight because it can be won - not all doctors are right - we can defy the odds. I still have lots of sick down times, but I don't let it get to me - I believe in getting out there and enjoying life to the full no matter what. You can't give up - giving up is not an option. Your child may have what is called a terminal illness, that dosn't mean you stop living life - that is when you stand up and be strong - be positive and tell yourself you can do it you can beat it. So many times I was told I was going to die - well I say BLA to that - hey I am still here, I am still living, I am growing everyday, I may have a monster inside me - but is sure as hell aint gonna get me - I will get it before it gets me. So - what ever cancer you may be battling remember tackle it head on and NEVER GIVE UP - NEUROBLASTOMA is a hard one to beat and that is why I need help to get the AWARENESS out there about NEUROBLASTOMA and get people to donate to finding a cure so no more kids have to fight this monster.

MY FRIENDS

I have lots of sick friends out there, I can't mention every one all the time - but I wouldl like to mention a couple of friends each time I do a journal. Not all my friends have NEUROBLASTOMA, they have other illness and different cancer. I like to visit all friends no matter what they have, I like to cheer them up and let them know that having cancer is not always a bad thing and that you can beat it and also cheer up some kids who are a little down in the dumps, I try to put a smile on their diles (face) I hope I do. So please I have two friends I would love you all to meet and go visit and they are:

ALLISON CARONE

HEATHER OWENS

Please stop by and say hi to them and before you go don't forget to stop by my GUEST BOOK forst and lease me a message so I know you have visited me - I love to read your messages of support.

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SEE YA MATES

I will see you all when I get back from CAMP QUALITY in a weeks time - until then I send you all my strength - courage - determination - hope and inspiration to you all and please don't forget to live life to the full each day and tell someone you love them each and everyday and give someone a HUG everyday - Keep a SMILE ON DILE (face) and I send you lots of big big big big big KOALAHUGS

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The week I lost two Great Mates

G'DAY - IT'S JAY

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JAY'S (SMILE MAIL)

P.O. BOX 2075

FOUNTAIN GATE 3805

MELBOURNE - VICTORIA - AUSTRALIA

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THE SURVIVOR MOVIE (Who I am - A true Survivor)

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MY WEEK

This past week has been the worst week of my life - I lost not ONE but TWO of my MATES my all time HERO'S who took the time to care about me and my illness and below I will talk about my Mate Peter Brock - V8 Supercar Driver who was my mate and now gone. Australia is mourning TWO great HERO'S - Steve Irwin and Peter Brock . Although I have been very sad this week, I must get on with my life the best I can. Peter Brock told me to enjoy life and that is what I aways say to everyone out there. Enjoy your life, live you life to the full now because you just don't know when it will end. Living with my illness Neuroblastoma has been a challenge, a challenge I battled, conquered and hopefully won, I how hard it is to try and survive and how close many times I came to losing my life. That is why now, I make the most of my life and do everything kids love to do and also get the opportunity to do things other kids don't get the chance to do because of my illness. Meeting my hero's, hanging out with my hero's is an opportunity I don't think I would have got it I did not have cancer - which is a shame, but true. I got to not only meet Peter Brock, he became my mate and was always there for me and he did a lot for kids with cancer. Losing my mates this week has been very hard, I sometimes say to darlsy, no it's a joke, they didn't really die did they - but then I do know that it is true, my mates will never come back. This week has been the worst for Australia and Australians. I am not doing a big journal today, I am going to wait and do a big journal sometime next week.

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JAY - NEUROBLASTOMA - DARLSY MUM (SPINAL SURGERY)

I have been doing ok - but still get a lot of headaches which have been annoying me all week. I stayed at school and did not come home even though my headaches were killing me I wanted to stay at school because I had a lot of things to do. My headaches, my leg pain are the worst but still we have not been able to find the coarse of them. As you know I was unable to go to the Neurologist appointment I had waited for - for over 8 months because we did not know we had to pay a fee and darsly did not have the money and now we have been told I have to wait another year before I can see the Neurologist. After tackling so much in my life, I think I can put up with the headaches and try to get on with things the best I can, but it would be nice to know why I get them.They have already ruled out Migraine, and say I don't have symptoms of migraine but was never given a reason as to why I get them so severe. With my Neuroblastoma, I have been a real lucky one, but it was not easy battling Neroblastoma and there are no guarantees that things will always be ok. I do have the spot which sits on my spinal cord at T-11 - T12, it is like a time bomb sitting there, it could sit there, it could explode. If it could be removed it would be a great then I would not have to worry and darsly would not have to worry, but where it sits it is inoperable and has to stay there and we hope it sits there until I am 80. Neuroblastoma is unpredictable and can come back at anytime - it is aggressive and it is a monster and that is why I continuously try to ge the message out there about NEUROBLASTOMA - I want to get the AWARENESS out there about NEUROBLASTOMA, a horrible cancer which no one knows about and which has no CURE. I can talk about lots of difference cancers to people, and they know what I am talking about but when people ask what type of cancer do you have and I say NEUROBLASTOMA - they look stupid and say WHAT the hell is that - never heard of it - well in my opinion that is not good enough and people need to know that NEUROBLASTOMA is a silent killer which people need to know about and this cancer is killing too many innocent lives. If you can give to NEUROBLATOMA RESEARCH please do so, you will be helping to find a CURE. Go to my NEUROBLASTOMA page and there are details of how you can help find a CURE. Oh my CHIN - it healed pretty good and I had the stitches out last week, but my SHOULDER is still very sore after my great bike crash. Darlsy has not been doing that good this week, her back is giving her a lot of pain. Her spinal surgery was a big major operation and the healing process takes a very long time. Darlsy is doing things she should not be doing and the pain she has is really bad. She is unable to go back to work for atleast another 5 months which makes things very difficult for us. Darlsy wants to go back to work, but she may not be able to go back to work at all if her back doesn't heal properly. Darlsy is pushing herself to get fit again but she is hurting herself more by doing it. I try to help darsly when I can, we have to help each other because we only have each other. Darlsy is a Personal Trainer/Fitness Instructor but may not be able to go back to doing that type of work so she is trying to figure out what else she might be able to do because the range of movement darlsy has at the moment is not good.

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THIRD PLACE

My Stethoscope of the Future - I got third place, which I am happy with, but I did think that my project was a bit better the one's that won but it doesn't matter, I got third and a certificate and my project was recommended to the local paper for patent, also was acknowledge for out standing work and the judges all said it was an INGENIOUS IDEA. I am glad the project is all over and done with - it took me 2 months to complete. There is only one week left of school - yep that's right , on the 15th September that is the last day of term three and we get two weeks holiday and I can't wait because I am going on Camp Quality for the first week of my holidays and I am looking forward to the break away with my companion.

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MY MATE STEVE IRWIN

The above picture is me JAY with some of the things Steve Irwin gave to me -it was so funny getting all these creatures - these are just some of them sitting on me - but that is what Steve was he was a man who loves all creatures big and small. The picture of his family which is signed by Steve will be treasured. Thanks Steve for taking the time to care about me and I will miss you mate.

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ME - 'JAY' & 'PETER BROCK'

MY MATE - MY TRUE FRIEND

My mate Peter Brock - I will miss you so much mate. Peter Brock died on Friday 8th September doing what he loved. Peter was a legend V8 Supercar Driver and Hero to thousands of Australians. Peter was driving in the Taga Ralley in Western Australia when he lots control and slammed into a tree which killed my HERO my MATE instantly. I was lucky enough to say that Peter Brock was my mate. Peter did a lot for kids with illness, and other causes and he took the time to always visit me in and out of hospital not only during difficult times in my life but also at any time of my life. The above photo's are very precious to me. Peter took me for a ride in a LOTUS around Melbourne, just him and me and each time we stopped at traffic lights people would be looking at us becaue they new it was the famous Peter Brock and I had the biggest smile on my face because I knew how lucky I was to be sitting in a car with Peter Brock. The photo above of Peter Holding me - he was just like a dad. The best thing was that Peter remained friends, he remained my mate and never ever forgot about me, he would always call or email and check up on me and when I was in hospital he would take the time to come see me. I have lots of memories of Peter and on all the things he signed for me he would always write - ENJOY LIFE - and I made sure I always did, not matter how hard my life was, I always enjoy life because that is what Peter told me to do. Peter was a very SPIRITUAL man only those who new him knew this, and Peter always had time for me - always. Peter enjoyed life right to the end. It is ironic, this week I lost TWO of my Hero's and they died four days apart from each other, and their birthdays are four days apart from each other but on different years. Peter is going to have a STATE funeral next week and I will be there with my darsly to say goodbye. Thanks for the great times mate - I will miss you MATE .

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ME 'JAY' & JEFF

My CAMP QUALITY companion

When I was at the V8 SUPERCARS last week, I caught up with my CAMP QUALITY companion JEFF. He is a Coach driver and had to drive a load of school kids down the the V8's. Jeff and I had lots of fun just like we do on Camp. Above is the little Four Wheeler which the V8 Drivers ride around in. Darlsy said, quick you two jump on the Four Wheeler and I will take a photo, so Jeff and I jumped on (Such a cool photo). Jeff is a wonderful man, he takes care of me when I go on Camp Quality, all the companions are volunteers and do it out of the goodness of their heart. JEFF and I have so much fun together and it is only one week to go and I get to go on CAMP QUALITY with JEFF. We leave for Camp on the 17th September and I will have so much to tell after I get back.

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ME 'JAY" In the simulator

Last week at the V8 Supercars, they had these Simulators where you can play V8 Supercars three which is a playstation game. It is just like driving the V8 Supercar around the track - it is so cool. I had lots' of goes on it and would love to have one but they cost over $3,000. I did really well on it and did not want to get out - I was having so much fun.

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ME 'JAY'

Standing at the V8 Supercars Australia Truck

Now this is one COOL truck, this is the V8 SUPERCARS AUSTRALIA truck, this is the truck which has all the media people inside. It is all set up inside with computers everywhere whatever happens it is all recorded straight away on the V8 Supercars website. This is the truck which my mate COLE the boss man hangs out in and lets me look inside and Cole is the one who makes everything possible for me.

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MY WONDERFUL FRIENDS

Please know that I think of each and everyone of you daily - I can't always come to visit each day, but I do get around to some of you when I can. If I have not been around to visit you lately, don't worry I will get there and cheer you all up. I want to thank all the people who have sent me SMILE MAIL, it is so cool to receive mail from overseas. Some of you would have got a POST CARD from me as I did send a few out a few weeks ago, I still have a list of people I have to send POST CARDS to and hopefully I will get those out this week some time, so please check your mail boxes. REMEMBER my little sick friends and families, you must NEVER GIVE UP, and as I do, not matter how hard things get you must try to live life to the full and enjoy what you have today and make the most of it and treasure everymoment. Life is unpredictable and we never know when our time is up, so instead of winging and griping about the most petty things in life - get off your butts and enjoy what you have today because it could be gone tomorrow. Us cancer kids tackle and battle a lot, but we never complain, we have a mission in life and that is to live - as we fight for our life we never complain. REMEMBER - PAIN is TEMPORARY - QUITTING is FOREVER as tough as it gets you must fight on and LIVE STRONG - cancer can be beaten. PARENTS please stay strong, stay positive, never give up on your kids because us cancer kids are tough, tougher than cancer and we are tougher than you may think we are. Please keep BIG SMILES ON YOUR DILES and I will be around to visit you all very soon.

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PLEASE DON'T FORGET TO SIGN MY 'GUEST BOOK' I LOVE TO KNOW YOU HAVE VISITED AND LOVE TO READ THE NICE MESSAGES - THANK YOU

V8 Supercars & Steve Irwin & Peter Brock

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G'DAY MATES

IT'S JAY & DARSLY MUM

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JAY'S (Smile Mail)

P.O. BOX 2075 Fountain Gate 3805

Melbourne - Victoria - Australia

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THE SURVIVOR MOVIE (Who I am - A true Survivor)

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UPDATE

Another Aussie Legend dies

PETER BROCK

Legend V8 SUPERCAR DRIVER

1945 - 2006

Died in Race Car Accident Friday 8th September

I will put up my photo's with Peter Brock during the weekend, he was another hero of mine and he took me for a ride in a LOTUS, another loss to Australia, the second loss of a Aussie Legend in the same week

We will miss you Peter

STEVE IRWIN

1962 - 2006

Our Tribute to our Aussie Mate

Australia is devastated - Jay and I are devastated by the tragic loss of STEVE IRWIN

Today is all about you STEVE.

You died doing what you loved, you died for your beautiful daughter BINDI, you died the day after FATHERS DAY which is devastating.

We have lost what we consider to be FAMILY - a friend - a mate - a legend - a role model and we cannot stop crying.

Steve was ENDURING, he was a TRUE BLUE FAIR DINKUM AUSSIE who was the same on screen and off screen.

Jay has lost a mate and his little heart is broken

I had to tell JAY about Steve's death when he walked in the door from school and Jay thought I was playing a trick on him, I had to wait for the news to come on so I could prove I was telling the truth, then he burst into tears - he is devastated.

Jay disappeared and I looked around and there he was on the lounge floor crying with the BOX OF AUSTRALIA ZOO gifts Steve sent to Jay.

Then Jay went to the computer and sent all his mates at AUSTRALIA ZOO a heartfelt email.

STEVE you are our hero and you died a hero.

When Steve was speared in the chest it was all captured on film, and to the end Steve was a hero, he pulled the Stingray Barb out of his chest himself but was pronounced dead as soon as he was pulled into the boat (WHAT A HERO MATE)

Steve adored his children, little BINDI SUE, and BINDI just loved her father, please say lots of prayers for little BINDI because this will be a great great loss for BINDI and also little BOB and his beautiful wife TERRY.

STEVE - you are AUSTRALIA and AUSTRALIA will be lost without you mate.

STEVE we will miss you so much - AUSTRALIA will miss you - you did so much for the animals, for the environment and anything you earned you put back into saving the animals and buying land for the animals.

You are the epitome of a TRUE BLUE FAIR DINKUM AUSSIE and Australia will not be the same without you MATE

"CRIKEY MATE"

MY 'V8 SUPERCAR WEEKEND' (Sept 1st to 3rd)

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You can see below all my PHOTO'S of the V8 SUPERCAR DRIVERS. What a weekend it was and very tiring. It all started late Thursday night when I was VIP Special Guest at a function with all the V8 Supercar Drivers. It was so COOL - all the drivers recognized me and would yell out - HEY JAY mate and I would go over and get a photo with each one of them and they also signed photo's from last year and all had time to have a chat with me - I was nervous but soon was ok, they are such nice guys and for them to remember me was fantastic. FRIDAY it was out to the track at Sandown early where I caught up with all the guys and they showed me in the garage and there cars. Darlsy took more photo's the entire weekend and printed them out and each of the drivers signed each individual photo for me - so all my photo's which you see on the slide - they are now all signed by the drivers. It was a long tiring day FRIDAY and back again to the track on SATURDAY and met up with more of the drivers. Steven Richards took me to look at his JACK DANIELS car and I got a photo. JAMES COURTNEY the one in the Jeldwen blue shirt - he is so nice - I was just walking passed his truck on Saturday and he yelled out - HEY JAY come here mate, so I went over and he chatted to me for ages and darsly took another photo. SUNDAY was big race day, and we were out at the track early so we could catch up with the drivers before their big race. We also met up with KAREN she is one of your CARINGBRIDGE FRIENDS from Australia - just click KAREN and you will know who I am talking about, she is in a wheelchair and has CP and she was so excited to meet me. Darsly organized for KAREN to meet her favorite V8 SUPERCAR DRIVER who is MARK SKAIFE, she did not believe she was going to meet him, but we soon convinced her that her DREAM was going to come true. MARK SKAIFE is a wonderful man and we took KAREN around to Marks truck where he came out especially to make KAREN dream come true - she could not believe it - we took some photo's for her to prove she met him and he also signed her jacket and also signed my photo of him with me. It made KAREN day, and she had a great rest of the day - we also got her to meet PAUL DUMBRELL and she could not believe that either. All the drivers are good mates and they will always take the time for me. I did the last round of wishing all the drivers good luck especially RUSSELL INGAL and JAMES COURTNEY and then went and sat in the grand stand with KAREN and darsly. It was a fantastic race all the way through, unfortunately Russell nor James won the race but the FORD BOYS came through and won over Holden. The Cat car won which is JASON BRIGHT and they only won by .15 seconds, it was so close but we won GO FORD. We had an exhausting weekend, and darslys back really has taken a lot and she is in a lot of pain and is glad the weekend is over. I hope you all enjoy looking through the SLIDE SHOW of all the V8 SUPERCAR DRIVERS I got to hang out with on the weekend and also a big thank you to my mate COLE who always is nice to think of me and make me welcome at the V8 SUPERCARS.

AT THE "ALFRED HOSPITAL" 31st AUGUST 2006

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It was time for DARSLY MUM to go to the "ALFRED HOSPITAL" in Melbourne to have her CT SCAN and see her surgeon MR. HUNT. We drove into the hospital which did not take that long and we went up to the 2nd Floor where Darlsy gave the receptionist the form and Darlsy said - I have to have CT SCAN before I see Mr. Hunt. The receptionist, said NO you are having an X-RAY, darsly said NO - I am having a CT SCAN, the receptionist started get agro and said you are booked in for an X-RAY, darsly said to here 'You can't see nerves and muscle on an X-RAY', the form Mr. Hunt gave stated a CT SCAN. The receptionist then said - I was the one who book the X-Ray, and darsly said, well you are wrong aren't you, the form stated a CT SCAN, the receptionist went away to prove to darsly that the form said X-RAY, she came back with the form and yep darsly was right, it stated CT.SCAN, and darsly has been waiting for this scan for 5 weeks and the stupid receptionist booked her in for an X-RAY. Well, darsly blew her top, and demanded to see the CLERK of bookings - which she did and she said to the Clerk, I am not leaving this hospital until I have my CT SCAN, which I have been waiting for - for over 5 weeks now, and your incopetent receptionist booked me in for an X-RAY where the form clearly states CT SCAN. Well they were all running around like bow flies and then the Clerk came back to darsly and said, ok we have been able to get you in for the CT SCAN, no apology was given my the Clerk or the receptionist. Darlsy then had only 10 minutes to have the scan then see Mr. HUNT. After the Scan was done, we went back up the the receptionist who was very sarcastic, she said, "OH see it was done wasn't it" darsly said that is not the point, the point is you made a mistake and will not admit it. Well the receptionist got more rude so we just walked away. Finally got to see Mr. Hunt, he brought up the CT SCAN on the computer and explained it to Darlsy. He said it is looking good and healing well but still have the problem of the numbness which could be caused by inflammation, or from the graft site. He showed us where the bone graft was taken from and darlsy has a big hole in her hip and she said is that why my left hip is so sore and numb. Mr. Hunt said, it could be what is causing the numbness, but not sure and he said he has never come across this numbness before. He said that darsly might have to ave injections into the nerves to get the inflammation down and then she has to come back at the end of NOVEMBER to have more SCANS. Darlsy asked when she was aloud to go back to work - and Mr. Hunt said "OH" you can't go back to work for atleast another 4 MONTHS, so that is not until JANUARY 2007. Darlsy was not happy about that, because we have been struggling a lot and it is hard for darsly not having an income to pay bills, and pay for school things for me for next year. See the PHOTO'S below - that is me JAY standing outside the ALFRED HOSPITAL and the drawing is the next drawing I did for the TRAUMA department at the ALFRED. I went down to visit all my friends at the TRAUMA EMERGENCY DEPARTMENT and they loved that I did them another drawing. They have all my drawings hanging up in the EMERGENCY DEPARTMENT and everyone comments on my drawings. The helicopter was not there today, so I did not get to see it, maybe next time. We had to go, because we had to get home for my big function tonight with the V8 SUPERCAR DRIVERS.

MY "STETHOSCOPE OF THE FUTURE"

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My 'STETHOSCOPE OF THE FUTURE' is finished, my project which has taken 2 months to complete. I took it to school yesterday (4th Sept) and the teachers were in amazement and I had to go and present it around the class rooms. I have to on Tuesday 5th do my bi presentation in front of all the judges, but have already been told my work on this project is OUTSTANDING and the best presented project, with a lot of time - effort - thought and research gone into it. I will let you all know what happens after my project has gone before the judges.

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PLEASE DON'T FORGET TO SIGN MY GUEST BOOK - LOTS OF PEOPLE VISIT BUT THEY LEAVE BEFORE SIGNING - I LOVE TO READ YOUR MESSAGES AND KNOW THAT YOU HAVE STOPPED BY.

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